Reflex Sympathetic Dystrophy (RSD) otherwise known as Chronic Regional Pain Syndrome (CRPS), is a nasty nerve disorder that makes the lives of those who have it complete chaos. It causes unbearble pain, like burning and swelling and it affects tons of people, yet no one knows about it. We're out for awareness and we need your help to get it. It's our goal to make the "Invisible Disorder" not so invisible anymore. It's our belief that awareness will lead to more research, which in turn will lead to a cure.
Hi my name Morgan!I was a normal active 18 year old girl. I taught preschool and was a happy senior in highschool! I am in my second semester of my senior year and it looks as if i will be spending part of that time in Phoenix Childrens hospital! MY story is long so i'll make it short. One morning I was in a rush and while getting in my best friends car my foot was ran over. It was just an accident. It was hard becuse i thought AND the doctors thought sooo many things! From a hair line fracture to a crushed joint and In the end it was a nerve compression injury with soft tissue damage. My foot healed orthopedically, but I was still in severe pain. After a very long time of doctor's telling me nothing was wrong, it was determined that I developed a rare nerve disorder from the foot injury. Finally after numerous doctors and medical procedures, I was sent to a hospital that is just great ! i have so many GREAT doctors! and it was just luck that they knew what to do! i was told i need to except it will take time! it is my first week in the hospital and there may or may not be many more! i am endureding excruciating pain that others should never face.
I have an amazing team of doctors - a great Physical Therapist and a great PAIN specialist, a great teacher that works with me on my school work! Two great Anesthesiolgists ! Great resident doctors! Great attending pediatrians. And of course great Nurses! BUT I GOT LUCKY!! please help me spread the awareness of this! It's scary and has caused me many tears! Sometimes i feel like I'm alone! BUT I NEVER AM - I HAVE SO MANY SUPPORTERS! It cheers me up - I love vistors ! Ya know RSD is curable if caught and treated early. I am going to beat this.
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